The Roya Kabuki Program at Boston Children’s Hospital aims to serve the Kabuki Syndrome Community every day both in the research lab and in the clinic. On Sunday June 9, 2019, our team Kabuki Friends is heading outside and walking to support these efforts so that we may create a happier and healthier future for this wonderful community.
We welcome any families and friends of the Kabuki syndrome community to walk with us! The annual walk event is held at the DCR Hatch Shell in Boston, MA and trails along the Charles River. We will be signing up for the 2 mile walk option. At the end of the course there will be food and drinks available for all walkers to enjoy. For more information about the event, we invite you to visit BCH Walk Website. We will be in touch with any registered families closer to the event date with specific information for meeting the day of the walk.
100% of the funds raised by the Kabuki Friends team will go directly towards advancing clinical care, providing resources for patients, and helping to raise awareness of Kabuki Syndrome. If you would like to support the team but do not plan to register as a walker, we welcome you to share details about the walk to help raise awareness. We thank you for your support and positive wishes!
Click here to join us and support the Kabuki Friends team!
-The Roya Kabuki Team
Questions about the walk or about how to register? Email us or call 857-218-KBKI.