The Team MissionCare, Change, Cure.


 

MeetThe Team


Image

Boston Children’s is a teaching affiliate of Harvard Medical School, where all of our physicians are also faculty. Our clinicians are also involved in research to improve our understanding of Kabuki syndrome and, we hope, discover new treatments.

The team speaks multiple languages including English, Italian, German, French and Mandarin. Interpreter services are available for other languages.

In addition to the core team below, we work closely with specialists in cardiology, endocrinology, immunology, nephrology, nutrition and physical therapy to cover all the needs of our patients. (Copied from BCH Site)

Image

Olaf A. Bodamer, M.D. Ph.D., FACMG FAAP

Co-Director

I like to make a difference in the lives of families who are affected by Kabuki Syndrome.
Image

Emanuela Gussoni, PhD

Co-Director

I do this in hopes I can help someone. Working on Kabuki is my purpose.
Image

Christina Hung, MD, FACMG

Lead Scientist

I work on Kabuki because there are families who feel like they aren't heard and I want to hear them.
Image

Tara Daly, MSc

Program Coordinator

It is a privilege to work with so many wonderful families, to do whatever we can do to help brighten the days of the as many children in the Kabuki Community as possible.
Image

Asma Rashid, MS

Genetic Counselor

I enjoy working with kids with Kabuki Syndrome—they happily greet me and are really friendly. I love that they are so resilient!
Image

Adam Tellier, MSc

Research Assistant

I am glad to be a part of the Roya Kabuki team because I know that the work that I am doing in the lab directly benefits the kids! And if I can make any of their lives just a little better than the work will be worth it.
Image

Julia Thomann, MS

Social Worker

As part of the Roya Kabuki team, I have the privilege of supporting families during their child’s complex medical care and bear witness to their strength and resiliency every day.