Next Step offers fantastic programming and experiences for young people with medical conditions such as cancer, HIV, and rare genetic conditions like Kabuki syndrome. Next Step focuses on providing support during the journey from adulthood to independent living.
This year their annual Campference events have gone virtual! A Campference is ‘one part fun, one part conference to ensure we are having fun but learning new skills for life as we do.’ The FaceForward Campference is open to young people ages 16-24 living with a rare genetic disorder or other rare chronic condition on July 9-11. There will be music, art, workshops, and more.
The program is free and participation is entirely online. There is an application process, and spots will fill up so if you are interested we encourage you to apply soon! Any questions regarding the event or application process should be directed to Next Step staff. Registration, application, and contact information can be found here.
If you participate in the Face Forward Campference we would love to hear about your experience! If you have any additional questions regarding workshops or available programming and resources through the summer, please contact Roya Kabuki Program Social Worker Julia Thomann.